Sarcoidosis & LDN - Question and Answer Forum - Elaine Moore Graves' and Autoimmune Disease Education

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Tuesday, September 07, 2010

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Registered users can submit a thread (each thread is a single question) on any autoimmune, thyroid or health-related topic – including questions about your pet! Questions will be answered by Elaine Moore. Because this is not a community forum, members will not be able to reply to threads once questions are asked and answered. Questions may be edited for brevity and grammar. If you need technical help, contact Admin.

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Sarcoidosis & LDN

6/27/2010 6:07 PM

Phil

Joined: 6/27/2010

Posts: 1

Sarcoidosis & LDN

Hi Elaine,

I have just ordered your book on LDN. I have sarcoidosis, probably for years, diagnosed last year when hypercalcemia caused acute kidney failure. On prednisolone for 4 months 40mg tapering to 5mg, finished this just before New Year, now I have an enlargened spleen, bone marrow biopsy on Wednesday.

Do you know of anybody using LDN for sarc, and how effective it is? I would really appreciate picking your brains on this one!

Best regards

Phil

6/30/2010 11:28 AM

Elaine

Joined: 8/1/2008

Posts: 1801

Re: Sarcoidosis & LDN

Hi Phil,

Although sarcoidosis isn't very common, I've heard from at least two people who are using it and have noticed improvement. Also, Dr. Bihari told me that he's treated several people with sarcoidosis using LDN with good results. What you'll probably notice is that your condition is no longer progressing and eventually you should see improvement in symptoms. Be sure to have your vitamin D level checked as it can be quite high in sarcoidosis and if yours is you'd have to avoid supplements containing vitamin D. Best, Elaine

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