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Registered users can submit a thread (each thread is a single question) on any autoimmune, thyroid or health-related topic – including questions about your pet! Questions will be answered by Elaine Moore.  Because this is not a community forum, members will not be able to reply to threads once questions are asked and answered. Questions may be edited for brevity and grammar. If you need technical help, contact Admin.

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 8/15/2009 3:33 AM
 

Hi Elaine!

Thank you so much for all that you do.  Finding your website, I've felt the most hope since being diagnosed as a hyperthyroid.  

I first came down with the symptoms in March, 2006 (diarrhea, severe itching, shaking hands).  Unfortunately, my weight loss was more gradual (about 5 pounds a month) and having no knowledge of the thyroid, I was not diagnosed until November, 2006.  By this time, I had all the symptoms and was very, very lethargic.  

I started on the beta blockers right away but I didn't start taking PTU until January, 2007.  I started on 2 pills of PTU (50 mg) 3 times a day + 1 beta blocker pill 4 times a day.  In August, 2007, I stopped taking the beta blockers and reduced my PTU intake to 2 pills 2 times a day.  I continued this until April, 2008 when I was told to increase my PTU intake to 3 pills (50 mg) 2 times a day.  This was probably my fault since I had become "relaxed" about taking my pills and was forgetting to take them and taking less of them because I felt I might be headed towards becoming hypo. 

Of course, by this time, my doctor was recommending RAI since I was not in remission.  I was planning to take the RAI in January, 2009 since I was being told (pressured) that it was the next step.  Happily, I wasn't able to take it when I had planned (family matters) and stumbled upon your website soon afterwards.  Suffice it to say, now, I plan to stay on PTU indefinitely.  

(Sorry for the long post.)  I haven't had a chance to read your book yet.  But I did get my latest blood tests and I wanted to get your opinion on them.  I should mention that I had a 10 pound weight gain last summer and I felt that I was becoming hypo so after my April check-up, I decreased my dosage to 4 pills of PTU (50 mg) a day on my own without my doctor's consent.  When I saw him in July, I told him what I did.  He told me to go back to 6 pills a day.  I'm currently taking 5 pills a day (3 in the morning and 2 at night).  

Blood Tests
4/21/09   TSH, 3rd Generation - 0.07 (0.40 - 4.50 mIU/L)
               T4, Free - 1.4 (0.8 - 1.8 ng/dL)

7/14/09   TSH, 3rd Generation - 0.02 (0.40 - 4.50 mIU/L)
               T4, Free - 1.5 (0.8 - 1.8 ng/dL)

Thank you again so much for your time.  I have ordered your book and look forward to reading it!

yours,
mina
 

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 8/17/2009 11:11 PM
 

Hi Mina,

Your labs look great and you could even be on a lower dose of PTU. You want to be on the lowest dose needed to keep FT4 within range, preferably nearer to the high end of the range regardless of TSH.  TSH typically stays low (and doesn't mean you're hyperthyroid) until you're near remission or your dose is too high. Some doctors get confused by this, but you're considered euthyroid (normal thyroid function) if you're FT4 is in range.

Over time, you'll be able to gradually reduce your dose and as you near remission TSH will start to rise. You want to avoid becoming hypothyroid (having an FT4 too low for your body's needs even if it's range) because hypothyroidism encourages thyroid antibody production.  Best to you, Elaine

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