Am I in remission? - Question and Answer Forum - Elaine Moore Graves' Disease and Autoimmune Disease Education

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Wednesday, February 08, 2012

..:: Q & A ::..

THE Q & A

Welcome to The Q&A with Elaine Moore. Registered members are invited to ask any question of Elaine Moore on autoimmune diseases, Graves' disease, other thyroid diseases and subconditions, laboratory work, traditional and complementary medicine, triggers and environmental influences, thyroid and immune disorders in pets and animals, and other relevant areas of inquiry.

Each thread represents one question with one answer and will only appear at the time it is answered. Once answered, further replies cannot be made to the same thread since each thread represents only one question. A new thread will need to be started for additional questions.

Questions are answered solely by Elaine Moore, a medical writer and clinical laboratory scientist, MT, CLS, with more than 30 years of experience in immunology. Moore has also authored and edited over a dozen books in the area of health sciences and is an editor for McFarland Publisher's Health Topics Series.

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The Q & A with Elaine Moore

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7/5/2010 6:03 AM

Lisa

Joined: 6/19/2010

Posts: 7

Am I in remission?

Hi Elaine,

I'm feeling a little excited today but don't want to jump the gun. I've written to you before about my ongoing saga with reducing my Carbimazole intake. I recently dropped back from 20 mg a day to 10mg. My Endo wanted me to stop for 2-days a few weeks back and go to 5mg but I had heart palps, shakes and a multitute of other horrible side effects so I went back on 10mg.

I have slowly tried to decrease the meds and got to about 7.5 a day until yesterday. I tried to get out of bed yesterday and soon as I sat up I had major vertigo and the whole room was spinning... I felt nauseas and dizzy all day and all night and had to stay in bed. My sister in law has had this happen to her a lot when she takes to much of her epilepsy medication so I immediately discontinued the Carbimazole. It's now day 2 and I am too scared to take my meds but I feel good. I'm a little dizzy today but I've only really had a handful of dizzy spells and other than that I feel fine :)

Should I go back on my meds? Or should I stay off them? I don't feel 100% but I have no symptoms... Well not yet anyway.

It's to early to get an accurate blood test to find out where my levels are at because I've gone from 20 to 5, back to 10 and then 7.5mg. I know that this in itself is dangerous and I shouldn't have messed around with these meds like I have but finding the correct level that works for me is so hard, and when people are telling me that I have to wait 4-weeks to get an accurate test what else am I meant to do?

7/7/2010 12:25 AM

Elaine

Joined: 8/1/2008

Posts: 3173

Re: Am I in remission?

Hi Lisa,

The anticonvulsant meds used for epilepsy are very different from anti-thyroid meds. It's generally not a good idea to stop meds abruptly since this can cause hyper symptoms to return. In your case, it's difficult to say what happened. Nausea and dizziness can be caused by viruses, food poisoning and many other things. When we have a thyroid disorder, it's natural to assume a thyroid imbalance is the cause, but this isn't always the case.

I'd probably go back on at least a 5 mg daily dose to be safe and then have labs in 2 weeks or so. TSH won't reflect what's going on but your FT4 level should give you a good idea if a 5 mg dose is appropriate. Best to you, Elaine

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