CIDP and coccyx pain - Question and Answer Forum - Elaine Moore Graves' Disease and Autoimmune Disease Education

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Wednesday, February 08, 2012

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Welcome to The Q&A with Elaine Moore. Registered members are invited to ask any question of Elaine Moore on autoimmune diseases, Graves' disease, other thyroid diseases and subconditions, laboratory work, traditional and complementary medicine, triggers and environmental influences, thyroid and immune disorders in pets and animals, and other relevant areas of inquiry.

Each thread represents one question with one answer and will only appear at the time it is answered. Once answered, further replies cannot be made to the same thread since each thread represents only one question. A new thread will need to be started for additional questions.

Questions are answered solely by Elaine Moore, a medical writer and clinical laboratory scientist, MT, CLS, with more than 30 years of experience in immunology. Moore has also authored and edited over a dozen books in the area of health sciences and is an editor for McFarland Publisher's Health Topics Series.

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6/24/2010 2:08 PM

ASSPINE

Joined: 6/24/2010

Posts: 1

CIDP and coccyx pain

I read your article on CIDP. Can you please try to answer the below questions.

Has there been any evidence that CIDP can cause coccydina pain?

I'm a OA patient by definition because negative for other rheumatic diseases. Even though my Dad has RA and sister has chronic fatigue syndrome.

But after failed back surgery and still having depleting neuropathy pain in leg and foot along with new coccyx pain a year out from last surgery I'm wondering.

The only thing that has been found to eliminate my coccyx pain and some of my foot pain has been sulfazilizin. Which was given to my by family doc. after rheumy refused to RX the med.

I now think I might not have OA, but a auto-immune based disease such as AS or CIDP.

Besides Biopsys, what can I do to validate since MRI and bone scan negative. Along with blood work and not having the HLA B27 gene.

I did have a EMG and the result was undiffined. Meaning I scored right on the line as having nerve damage or not nerve damage.

I just don't get why I continued to get worse until the Sulfa? I also wonder if that med helps if something better might eliminate my neuropothy pain. like TNF or Metho.

What else should I do to determine what is going on.

your help or insight would be great!

After my 2nd. L5S1 surgery I started to develope bad leg neuropathy pain. Then a year out from my surgery I developed really bad Coccyx pain.

6/25/2010 1:43 AM

Elaine

Joined: 8/1/2008

Posts: 3174

Re: CIDP and coccyx pain

Modified By Elaine on 6/25/2010 12:45:21 AM

Hi,

Although ankylosing spondylitis can occur in people who test negative for HLA B27, what you're describing doesn't sound like AS or CIDP. Reiter's disease or septic arthritis come to mind because of your response to sulfa meds and because you're describing bone and joint pain rather than musculoskeletal problems. Septic arthritis is fairly common after gastrointestinal infections especially in re-infection. Other possibilities are rickettsial infections and Lyme disease. It would be good if you had tests for some of the infectious disease markers.

OA is possible but osteoarthritis usually is related to degenerative changes caused by injuries. The spread to the coccyx suggests moe of a system tye of inflammation. Best, Elaine

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